The last two days have been very challenging. Although Ted has been admitted to rehab, he has really not experienced the rehab experience. Since his admission to rehab, he has been extremely drowsey and hard to wake up. Medication may be the culprit, but the staff is unsure. They are unhappy that he is not functioning the way he had been several days ago. He has been too tired to do about anything that is expected. When I visited last night, he did not respond to me at all as he had previously been doing, and he could hardly open his eyes. It appears to me to be about a 2-week setback which is extremely frustrating to me.
It has been explained to me that the rehab experience is very strenuous for the patients. When they are not in therapy, they are tired and need to rest. Accordingly, no visitors PLEASE until he is out of rehab. When he comes home, there will be ample time to visit him and to catch up. At this time, he cannot talk and is very, very tired so there is no reason to visit him.
Last night was one of the toughest since we got past the life-and -death issues during the first week. At day 29, I am having trouble holding it together. I have been told repeatedly to be patient, but this recent appearance of a serious setback is overwhelming. If you find time in your New Year's weekend to send a prayer Ted's way and my way, it would be much appreciated. All of your messages, thoughts, and prayers are much appreciated. I wish you all a Happy New Year and I hope that my next blog post is back to progress.
Sorry to vent on New Year's Eve..... Anne
Saturday, December 31, 2011
Thursday, December 29, 2011
December 29 - Ted out of trauma unit - into rehab
Yesterday afternoon, Ted was moved from the MVH trauma unit to the MVH rehab unit. They consider that a discharge from the hospital. The rehab unit is considered a separate facility although it is on the same floor and there is no separation... go figure.....He is out of his hospital gown and wearing his own clothes.
For those of you who know us, it is not surprising that I blew up at him yesterday when he was watching TV and not responding to me when I visited. I threatened to take the TV away, and he then started looking at me and giving me appropriate nods to my questions. I know that he can't talk yet, but he can certainly pretend to be attentive. I told him that if he ignored the therapists and didn't do what they asked him to do , that he was never coming home and he would stay in a nursing home forever. That got some attention!
I am anxious to hear how his first day of rehab went...... Keep those prayers going......include me as well..... After 27 days of going to and from the hospital and trying to keep the rest of my life on tract, it is wearing on me..... just ask the kids! In all seriousness, thank you for being there, thinking of us, and praying for us...... Here's to a better year! Fondly, Anne
For those of you who know us, it is not surprising that I blew up at him yesterday when he was watching TV and not responding to me when I visited. I threatened to take the TV away, and he then started looking at me and giving me appropriate nods to my questions. I know that he can't talk yet, but he can certainly pretend to be attentive. I told him that if he ignored the therapists and didn't do what they asked him to do , that he was never coming home and he would stay in a nursing home forever. That got some attention!
I am anxious to hear how his first day of rehab went...... Keep those prayers going......include me as well..... After 27 days of going to and from the hospital and trying to keep the rest of my life on tract, it is wearing on me..... just ask the kids! In all seriousness, thank you for being there, thinking of us, and praying for us...... Here's to a better year! Fondly, Anne
Wednesday, December 28, 2011
December 28, 2011 - GOOD NEWS
I just received the telephone call from Miami Valley Hospital rehab that Ted will be admitted to their rehab unit, pending insurance approval. They do not expect any insurance approval issues. This was my first choice for rehab. So, after two prior denials, the third time is the charm. Ted did really well yesterday. He walked up and down the hall on three separate occasions and is actually putting on his helmet, but has trouble taking it off - the snap gives him a problem....They do not know if he will move today or tomorrow.
Ted is still not talking, but is attempting to do so.
My understanding from MVH rehab is that they will work with him a total of three hours a day on physical therapy ( getting him to stand and walk independently), occupational therapy ( getting him to use his hands such as for eating, writing, dressing - zippers, buttons, snaps, turning pages on books and newspapers), and speech therapy ( helping him to swallow, talk, communicate, and cognitive skills).
The expectation for rehab is 2-3 weeks, but I will know more when I have my first conference with the case manager on Tuesday or Wednesday of next week. Their goal is to get him to a point where he can go home. There is an expectation that he will have a caregiver in the home for awhile.
Once in rehab, Ted will start wearing clothes again. I am sure that he will be glad to get out of the hospital gown and to have some sense of dignity.
This is wonderful news for the new year..... Thank you all for your continuing support and for your prayers. Continue to keep Ted and us in your prayers. This next step is critical for Ted to get his "life back". Keep praying..... those prayers are effective. Thanks again, Anne
Ted is still not talking, but is attempting to do so.
My understanding from MVH rehab is that they will work with him a total of three hours a day on physical therapy ( getting him to stand and walk independently), occupational therapy ( getting him to use his hands such as for eating, writing, dressing - zippers, buttons, snaps, turning pages on books and newspapers), and speech therapy ( helping him to swallow, talk, communicate, and cognitive skills).
The expectation for rehab is 2-3 weeks, but I will know more when I have my first conference with the case manager on Tuesday or Wednesday of next week. Their goal is to get him to a point where he can go home. There is an expectation that he will have a caregiver in the home for awhile.
Once in rehab, Ted will start wearing clothes again. I am sure that he will be glad to get out of the hospital gown and to have some sense of dignity.
This is wonderful news for the new year..... Thank you all for your continuing support and for your prayers. Continue to keep Ted and us in your prayers. This next step is critical for Ted to get his "life back". Keep praying..... those prayers are effective. Thanks again, Anne
Tuesday, December 27, 2011
December 27, 2011 - More Good News
Ted was not discharged yesterday as planned. He was up twice - walking with his "walker" and his aide ( and me on one occasion). He walked all the way down the hall twice. It is a real ordeal to let him out of bed because he is "hooked up " to so many tubes and machines. The therapists from Miami Valley's rehab facility want to re-evaluate him again and re-assess him for admission to their rehab unit. He has been denied twice but this actually may happen. Miami Valley's rehab unit is my first choice. The primary rehab doctor was out yesterday, so he will have the final decision.
Ted has improved tremendously in the past week. He is trying to talk, but can't quite make out any words. He appears interested in sports scores and the Iowa Caucus.
I asked him if he wanted to watch the Gator Bowl with me, and he nodded affirmatively.
We thank you for your prayers. They are effective. Please keep them going....On to the new year... Anne
Ted has improved tremendously in the past week. He is trying to talk, but can't quite make out any words. He appears interested in sports scores and the Iowa Caucus.
I asked him if he wanted to watch the Gator Bowl with me, and he nodded affirmatively.
We thank you for your prayers. They are effective. Please keep them going....On to the new year... Anne
Sunday, December 25, 2011
Merry Christmas!
Ted will be discharged from Miami Valley Hospital on Monday, December 26, and will be transferred by ambulance to a rehab facility. That facility is unknown at this time. He has been turned down by several for the reason that he is not sufficiently strong to undergo the rehab activities. The social worker is working on this transition. I had a 2+ hour meeting on Friday afternoon with " the team" about his situation. It was longer than I expected, and was probably long overdue. It is surprising how many communication deficits occur in a hospital. They were surprised at things which had not been told to me, and were also surprised at things that I knew that I should not have known!
In the words of one of the comfort/safety sitters who hadn't seen him in a week, WOW, he has come a long way in a week. Ted has been standing, sitting, and even took 5 steps yesterday. He enjoyed watching The Christmas Story, one of his favorite movies. When asked yesterday if he wanted a Christmas gift, he nodded affirmatively. He received an "oldies" Christmas CD (Frank Sinatra, Bing Crosby, etc.) last night. He appeared to be reading the front and back.
He is still not talking, but is trying. When all four of us were visiting last night, he tried to say three words to Christine. It was not understandable, but we now know the identity of his favorite family member! That is no surprise. The question is.... what was he trying to say.....Are you taking golf lessons from Joel? Are you practicing your putting? Have you been to the driving range?
He is still not swallowing effectively so a feeding tube was inserted on Friday. This will enable him to go to rehab. When the boys were drinking pepsi's, he appeared to be very interested in having one himself. That is a good goal! Start swallowing so you can have a pepsi! I have been informed that the coordination of muscles is a very difficult task for the brain to handle, but will eventually figure it out.
He still sleeps most of the time, which is probably the most important activity for him at this time. It has been explained to me that his brain is desperately looking for the proper pathways to make the appropriate links and connections. They are very encouraged at his progress and his desire to listen, talk, respond to commands, and to communicate by gestures.
I was told on Friday that it will be about a year before we know how he "settles in.".
For those who have asked what you can do for Ted, me, or the family, please continue your prayers for the next year (2012). Those prayers are the most effective and helpful thing that you can do. He is ahead of schedule and there is no doubt that it is due to those effective prayers.
We thank you for taking time out of this busy and wonderful season to think of us and pray for us. Humor is extremely important...... when thinking of Ted, think of a humorous event involving him, including one where he was the butt of the joke. If you would like to email them to me, I would love to share them with him. Laugher is always a good remedy!
Merry Christmas to you and yours. We are headed for church and then to see Ted! Anne
In the words of one of the comfort/safety sitters who hadn't seen him in a week, WOW, he has come a long way in a week. Ted has been standing, sitting, and even took 5 steps yesterday. He enjoyed watching The Christmas Story, one of his favorite movies. When asked yesterday if he wanted a Christmas gift, he nodded affirmatively. He received an "oldies" Christmas CD (Frank Sinatra, Bing Crosby, etc.) last night. He appeared to be reading the front and back.
He is still not talking, but is trying. When all four of us were visiting last night, he tried to say three words to Christine. It was not understandable, but we now know the identity of his favorite family member! That is no surprise. The question is.... what was he trying to say.....Are you taking golf lessons from Joel? Are you practicing your putting? Have you been to the driving range?
He is still not swallowing effectively so a feeding tube was inserted on Friday. This will enable him to go to rehab. When the boys were drinking pepsi's, he appeared to be very interested in having one himself. That is a good goal! Start swallowing so you can have a pepsi! I have been informed that the coordination of muscles is a very difficult task for the brain to handle, but will eventually figure it out.
He still sleeps most of the time, which is probably the most important activity for him at this time. It has been explained to me that his brain is desperately looking for the proper pathways to make the appropriate links and connections. They are very encouraged at his progress and his desire to listen, talk, respond to commands, and to communicate by gestures.
I was told on Friday that it will be about a year before we know how he "settles in.".
For those who have asked what you can do for Ted, me, or the family, please continue your prayers for the next year (2012). Those prayers are the most effective and helpful thing that you can do. He is ahead of schedule and there is no doubt that it is due to those effective prayers.
We thank you for taking time out of this busy and wonderful season to think of us and pray for us. Humor is extremely important...... when thinking of Ted, think of a humorous event involving him, including one where he was the butt of the joke. If you would like to email them to me, I would love to share them with him. Laugher is always a good remedy!
Merry Christmas to you and yours. We are headed for church and then to see Ted! Anne
Thursday, December 22, 2011
December 22, 2011 - good news and progress
Yesterday was a good day for Ted Hoy. The NG tube is out of his nose/throat. He was sleeping like a baby - the best that I have seen him sleep in three weeks!
He stood up about 5 times, sat in "his chair" for awhile, and his safety sitter took him for a ride in a wheelchair to see the Christmas lights in the hospital. She thought that he enjoyed the "outing" and seeing something other than a hospital room.
He stood up about 5 times, sat in "his chair" for awhile, and his safety sitter took him for a ride in a wheelchair to see the Christmas lights in the hospital. She thought that he enjoyed the "outing" and seeing something other than a hospital room.
Wednesday, December 21, 2011
December 21,2011 - updates on Ted
Although this is the darkest day of the year, it seems springlike and we hope that it is an angel message that as the days lengthen, Ted's progress will continue and that he will feel more comfortable.
It has been recommended that Ted have a g-tube inserted into his stomach for feeding/nutrition purposes. I fought it for several days, but Ted is still not swallowing fully and he is really angry and frustrated about the NG tube that is irritating him. He appeared to "consent" to the surgery for the feeding tube, so I have consented. The dr. explained the procedure to Ted, at my request, and Ted appeared to understand. That should happen today or tomorrow.
As soon as that surgery is complete, they will monitor him for 24-48 hours and then discharge him to a rehab facility. I had asked for a referral to Dodd Hall at Ohio State, but that has been denied temporarily. I have someone researching the best local rehab facility. The hospital will not make a recommendation and suggested that I visit local rehab facilities and spend several hours there to see if I like them. Obviously, I don't have time to do that. It is possible that Ted could be discharged on December 24, 25, or 26. They cannot give me a schedule or a timeline, so it becomes very frustrated in trying to coordinate work, family, and holiday activities with the hospital's lack of response. We are trying to remain patient and flexible, but after three weeks, it is becoming extremely frustrating. Originally, they had told me that he would do rehab in the hospital, but supposedly he is not ready for that.
Ted must wear a helmet when he sits in a chair or tries to stand. When he leaves the hospital, he will need to have the helmet on except when he is in bed. He cannot sleep on his left side, and he must have a 24-hour safety sitter to make sure that he does not roll to the left. Unfortunately, he really likes laying on his left side!
Ted is still not talking. But, he is making lots of throat noises which is good. When Thomas explained to him the NCAA sanctions of Ohio State, he appeared very interested and frustrated with the NCAA decision. He appears to be interested in Jeopardy and ESPN - some things don't change!
He is not sleeping well and is very agitated and frustrated. Hopefully, when he goes to rehab, he will be able to sleep better. They wake him up every hour to check vital signs, etc.
The last few days have been several of the most frustrating of this journey. I think that my mother's situation ( in the hospital and going to a new nursing home), issues with Ted's retirement and short-term disability at Morgan Stanley, sleep deprivation, typical stress, and the fear of the unknown is taking its toll. Fortunately, your many kind messages and loving thoughts and prayers sustain us and inspire us.
. Prayers are still needed and appreciated. There is no doubt that the Christ is here and in our and your hearts and lives. This is the season for miracles and we trust that we are part of that process! Merry Christmas to you and yours, Anne
It has been recommended that Ted have a g-tube inserted into his stomach for feeding/nutrition purposes. I fought it for several days, but Ted is still not swallowing fully and he is really angry and frustrated about the NG tube that is irritating him. He appeared to "consent" to the surgery for the feeding tube, so I have consented. The dr. explained the procedure to Ted, at my request, and Ted appeared to understand. That should happen today or tomorrow.
As soon as that surgery is complete, they will monitor him for 24-48 hours and then discharge him to a rehab facility. I had asked for a referral to Dodd Hall at Ohio State, but that has been denied temporarily. I have someone researching the best local rehab facility. The hospital will not make a recommendation and suggested that I visit local rehab facilities and spend several hours there to see if I like them. Obviously, I don't have time to do that. It is possible that Ted could be discharged on December 24, 25, or 26. They cannot give me a schedule or a timeline, so it becomes very frustrated in trying to coordinate work, family, and holiday activities with the hospital's lack of response. We are trying to remain patient and flexible, but after three weeks, it is becoming extremely frustrating. Originally, they had told me that he would do rehab in the hospital, but supposedly he is not ready for that.
Ted must wear a helmet when he sits in a chair or tries to stand. When he leaves the hospital, he will need to have the helmet on except when he is in bed. He cannot sleep on his left side, and he must have a 24-hour safety sitter to make sure that he does not roll to the left. Unfortunately, he really likes laying on his left side!
Ted is still not talking. But, he is making lots of throat noises which is good. When Thomas explained to him the NCAA sanctions of Ohio State, he appeared very interested and frustrated with the NCAA decision. He appears to be interested in Jeopardy and ESPN - some things don't change!
He is not sleeping well and is very agitated and frustrated. Hopefully, when he goes to rehab, he will be able to sleep better. They wake him up every hour to check vital signs, etc.
The last few days have been several of the most frustrating of this journey. I think that my mother's situation ( in the hospital and going to a new nursing home), issues with Ted's retirement and short-term disability at Morgan Stanley, sleep deprivation, typical stress, and the fear of the unknown is taking its toll. Fortunately, your many kind messages and loving thoughts and prayers sustain us and inspire us.
. Prayers are still needed and appreciated. There is no doubt that the Christ is here and in our and your hearts and lives. This is the season for miracles and we trust that we are part of that process! Merry Christmas to you and yours, Anne
Friday, December 16, 2011
December 16, 2011 - more progress
Ted was moved from Intensive Care to the trauma unit yesterday. His sister Sue happened to be there visitng when the move occurrred. He still has a "companion" or "comfort therapist" that sits with him 24 hours per day. They want to make sure that he doesn't do anything to the "brain flap".
He seemed alert and watched Wheel of Fortune and Jeopardy - two favorites. He is still not swallowing or talking, but he is coughing, growling, chuckling some. Any throat noises are good and signs of improvement. .
I brought him "toys "- books and a Rubick's cube. He seemed most interested in the Rubick's cube. He held all of the books very gingerly, but did not open them. The fact that he can hold anything is also a sign of improvement. He is beginning to use his hands.
Keep those caring thoughts and prayers coming! They are effective and much appreciated. Anne
He seemed alert and watched Wheel of Fortune and Jeopardy - two favorites. He is still not swallowing or talking, but he is coughing, growling, chuckling some. Any throat noises are good and signs of improvement. .
I brought him "toys "- books and a Rubick's cube. He seemed most interested in the Rubick's cube. He held all of the books very gingerly, but did not open them. The fact that he can hold anything is also a sign of improvement. He is beginning to use his hands.
Keep those caring thoughts and prayers coming! They are effective and much appreciated. Anne
Thursday, December 15, 2011
December 15, 2011 - Update
Ted was very alert on Sunday, but I think that we wore him out. We were so excited to see him awake and alert that we kept visiting him. He slept most of Monday and Tuesday.
Yesterday, he was alert - more like Sunday. His head bandage is off - so it looks like he has had a lobotomy! He has been fitted for his helmet. I tried it on.... it is really uncomfortable. I doubt that he will want to wear it... but it will be a must.
He is still not swallowing or talking, but he is moving his tongue around some.... so there is progress. They are hoping that he will pass the swallow test today so that he get rid of the NG tube and start eating!
He appears to understand what is going on. He watched Wheel of Fortune and Jeopardy last night. He moved his hands to the Jeopardy music.
His attending physician is very happy with his progress as are we. Supposedly, he is "ahead of schedule" but I have been told that there is a long journey ahead in rehab. So.... keep those prayers going. I have to find a rehab facility for him, and that is not something that I am looking forward to doing or to fitting into my schedule.
We appreciate all of your warm thoughts and especially those prayers! Anne
Yesterday, he was alert - more like Sunday. His head bandage is off - so it looks like he has had a lobotomy! He has been fitted for his helmet. I tried it on.... it is really uncomfortable. I doubt that he will want to wear it... but it will be a must.
He is still not swallowing or talking, but he is moving his tongue around some.... so there is progress. They are hoping that he will pass the swallow test today so that he get rid of the NG tube and start eating!
He appears to understand what is going on. He watched Wheel of Fortune and Jeopardy last night. He moved his hands to the Jeopardy music.
His attending physician is very happy with his progress as are we. Supposedly, he is "ahead of schedule" but I have been told that there is a long journey ahead in rehab. So.... keep those prayers going. I have to find a rehab facility for him, and that is not something that I am looking forward to doing or to fitting into my schedule.
We appreciate all of your warm thoughts and especially those prayers! Anne
Sunday, December 11, 2011
More Good News - December 11, 2011
Because Ted was so "active" on Thursday, he basically slept all day Friday and was pretty groggy on Saturday. This morning, his attending physician told me that he was "amazed" and "extremely pleased" with
Ted's progress. Ted seemed alert and was moving all extremities in response to commands and gesturing to provide information. His left eye is partially open, and he keeps trying to open it with his fingers - unsuccessfully. He is still wearing a full head bandage and it is wrapped around his chin as well. The bleeding from the surgery has almost stopped. When it stops, he will get his helmet. I understand that it will look like an old-style football helmet. He will need to wear it to protect the area of missing skull. He is still on an NG tube, which they want to remove. But, he must be able to swallow. Right now, he does not have use of his tongue. They keep asking him to stick out his tongue - he tries, but nothing happens. They want him to start eating regular food, but he must be able to swallow.
When we left Ted this afternoon, he was watching NFL football and falling asleep. Some things don't change. That is what he has done on Sundays for years!
Your prayers have been very effective and appreciated. Please keep them going.... We appreciate your concern and care about Ted and us. Fondly, Anne
Ted's progress. Ted seemed alert and was moving all extremities in response to commands and gesturing to provide information. His left eye is partially open, and he keeps trying to open it with his fingers - unsuccessfully. He is still wearing a full head bandage and it is wrapped around his chin as well. The bleeding from the surgery has almost stopped. When it stops, he will get his helmet. I understand that it will look like an old-style football helmet. He will need to wear it to protect the area of missing skull. He is still on an NG tube, which they want to remove. But, he must be able to swallow. Right now, he does not have use of his tongue. They keep asking him to stick out his tongue - he tries, but nothing happens. They want him to start eating regular food, but he must be able to swallow.
When we left Ted this afternoon, he was watching NFL football and falling asleep. Some things don't change. That is what he has done on Sundays for years!
Your prayers have been very effective and appreciated. Please keep them going.... We appreciate your concern and care about Ted and us. Fondly, Anne
Friday, December 9, 2011
December 9, 2011 - MORE GOOD NEWS
Ted is becoming "active". He was up all night - attempting to talk and attempting to write. He wrote TED with his left hand - really not too bad, but it took him hours. All of the staff is pleased with his progress. He should be transferred out of the intensive care unit today to a trauma unit. He is becoming stronger and stronger - fights with the nurses when they want to do something to him. His left eye is starting to open. He actually laughed a couple of times last night with the nurses. He still can't talk. The kids told me that he "conducted" Deck The Halls when it was playing over the Christmas music station.
When I visited this morning, he was sound asleep. He will probably sleep most of the day considering he was up all night.
Anne
When I visited this morning, he was sound asleep. He will probably sleep most of the day considering he was up all night.
Anne
Thursday, December 8, 2011
December 8, 2011 - More Good News
Nursing staff reported that Ted was laughing this afternoon and writing his name with his left hand.
David
David
December 8, 2011 - LOTS OF GOOD NEWS
1. Thanks to all of you for your prayers, comforting messages, and FOR NOT CALLING. You have no idea how much it means for you not to call and not to ask questions. Last night and today were really, really good days. Ted got off the ventilator and life support early yesterday evening.
2. Ted started to respond well to commands early this morning. When I arrived at the hospital, it was obvious that he knew who I was, he responded to my comments, and made a lot of gestures to respond to my comments and questions. He kept trying to take off the oxygen mask. Finally I asked if they could take it off. He was breathing so well ( above 93 whatever that means) that they removed all oxygen for him.
Surprisingly, he pulled himself over to the side of the bed a couple of times to grab at me...... It's been a long time since he has done that! He wanted to be held and kept wanting to hold my hand.....He would squeeze and/or pat my hand to show approval of what I was saying. Sometimes he would even raise his left hand in a fist to show " right on". He is even nodding affirmatively and negatively at times to express his opinion.
Ted still can't talk or swallow. His left eye is still shut, but he was trying to open it with his fingers. The left eye is shut due to the swelling in his brain. I told him that he had a lobotomy to see his reaction. His right eye got very big...... then I told him that no one did anything to his brain. He gestured positively. I did tell him that I would be beating him at Boggle and Words With Friends for quite some time. He sighed forlornly.
While I was visiting him, a team of four doctors came in for their daily assessment. Their comments were "WOW - Ted you are really progressing." " I can't believe how much progress he has made since the weekend." "Considering that he has had two surgeries, this is amazing". That was when they took him off the oxygen. They may move him out of the intensive care unit in a couple of days. They still want to monitor him closely.
YOUR PRAYERS ARE EFFECTIVE. KEEP THEM GOING!
I have been told that there is a long road ahead, but I am so grateful for the progress that I have seen so far. There were times over the past week that I thought that we were losing him. Knowing that God and each of you were right there with us was of much comfort.
No visitors yet --- for those of you who want to visit, let me know and I will let you know when "he is open for business." Some of you with political agendas may want to visit him sooner than later before he can talk!
THANK YOU TO EACH OF YOU WHO HAVE EXPRESSED YOUR CONCERN ABOUT TED OR OUR FAMILY. IT IS MUCH APPRECIATED.
Any and all updates will be posted to this blog site. Thanks to David for setting it up. And, don't call!
It will be a merry Christmas! Anne
2. Ted started to respond well to commands early this morning. When I arrived at the hospital, it was obvious that he knew who I was, he responded to my comments, and made a lot of gestures to respond to my comments and questions. He kept trying to take off the oxygen mask. Finally I asked if they could take it off. He was breathing so well ( above 93 whatever that means) that they removed all oxygen for him.
Surprisingly, he pulled himself over to the side of the bed a couple of times to grab at me...... It's been a long time since he has done that! He wanted to be held and kept wanting to hold my hand.....He would squeeze and/or pat my hand to show approval of what I was saying. Sometimes he would even raise his left hand in a fist to show " right on". He is even nodding affirmatively and negatively at times to express his opinion.
Ted still can't talk or swallow. His left eye is still shut, but he was trying to open it with his fingers. The left eye is shut due to the swelling in his brain. I told him that he had a lobotomy to see his reaction. His right eye got very big...... then I told him that no one did anything to his brain. He gestured positively. I did tell him that I would be beating him at Boggle and Words With Friends for quite some time. He sighed forlornly.
While I was visiting him, a team of four doctors came in for their daily assessment. Their comments were "WOW - Ted you are really progressing." " I can't believe how much progress he has made since the weekend." "Considering that he has had two surgeries, this is amazing". That was when they took him off the oxygen. They may move him out of the intensive care unit in a couple of days. They still want to monitor him closely.
YOUR PRAYERS ARE EFFECTIVE. KEEP THEM GOING!
I have been told that there is a long road ahead, but I am so grateful for the progress that I have seen so far. There were times over the past week that I thought that we were losing him. Knowing that God and each of you were right there with us was of much comfort.
No visitors yet --- for those of you who want to visit, let me know and I will let you know when "he is open for business." Some of you with political agendas may want to visit him sooner than later before he can talk!
THANK YOU TO EACH OF YOU WHO HAVE EXPRESSED YOUR CONCERN ABOUT TED OR OUR FAMILY. IT IS MUCH APPRECIATED.
Any and all updates will be posted to this blog site. Thanks to David for setting it up. And, don't call!
It will be a merry Christmas! Anne
Wednesday, December 7, 2011
December 7, 2011
Much progress today:
All of your caring thoughts and prayers are appreciated and effective. Keep them going ... Thank You for not calling and for not asking questions.
Any personal messages for me should be e-mailed to AnneFrayne@myersandfrayne.com
Anne
- The pressure guage was taken out of Ted's head
- Ted was taken off life support / ventilator
- Ted is looking around with his right eye
- He is moving around - both legs and left arm - tries to grab at nurses and therapists
All of your caring thoughts and prayers are appreciated and effective. Keep them going ... Thank You for not calling and for not asking questions.
Any personal messages for me should be e-mailed to AnneFrayne@myersandfrayne.com
Anne
Sunday, December 4, 2011
Brief Recap (same as earlier e-mail)
Some of you may have already heard that Ted Hoy went into the emergency room at Good Samaritan Hospital on Friday morning due to a variety of symptoms, which culminated in his admission. I won't bore you with the details leading up to that. They are unimportant. In mid-afternoon, he was transferred to Miami Valley Hospital because he had "blood on the brain". When I arrived, he was being prepped for surgery. For those of you who like the details, a portion of his skull was removed to remove a large blood clot and the blood. Dr. Montcrief performed the surgery. All went very well.
Saturday, his brain began to swell ( such as a leg or arm swells when it is hit). Due to the limited space in the skull for swelling, a piece of skull was removed yesterday afternoon to allow for the swelling to alleviate brain damage. All went very well.
Ted is very stable, but unconscious. He is expected to regain consciousness sometime today or tomorrow. He is expected to be in the hospital for 3-4 weeks. After that, he will be wearing a "helmet" to protect the area of his skull which is covered only by skin for 6-8 weeks. When the swelling subsides, the portion of the skull that was removed will be replaced and the helmet will come off.
Because this affected the entire left side of his brain, he is expected to have limited speaking ability when he gains consciousness, but that is expected to return with practice. Ted likes to talk so he will probably progress quickly!
That is the quick and dirty. Yes.... this is serious stuff. Yes..... the entire family is stressed and scared.
Although I have shared this information with only a limited number of close family and closest of friends, the word spreads. Over the last few days, I have spent most of my time answering questions of doctors and nurses and answering telephone calls from concerned family and friends, and I tried to keep this a secret. Ted is a very private person, but the word gets out because people care. I can no longer physically or emotionally rehearse the story or events or answer the questions of concerned friends and family. YES..... I appreciate your concerns and caring thoughts so much.... You have no idea how much I appreciate your care and love. BUT, I can no longer spend my time answer questions and going over the story. As my father informed my mother years ago, work, children, spouse - in that order. Work pays the bills. Children must get priority over spouse. Well.... right now, it may be spouse, children, work,,,,, but the work must get done.
Here is a quick summary of where we are right now.
1. Ted is intensive care where he is expected to be for some time. No visitors are allowed except for me and the kids. No flowers, no food, no anything.
2. When Ted is moved to a regular patient room, I will notify this list and let you know. When he is allowed visitors and is alert and thinking again, he will welcome your visits and will be willing to talk politics, economics, history, and/sports. For those of you who want to know where he is mentally. Before his admission to GSH, he was concerned about the Herman Cain allegation ( he likes Herman Cain), he is still a Newt Gingrich fan, he is overly concerned about the American economy, he was excited about the appointment of Urban Meyer as the OSU football coach, he was joking about Ohio State and Florida possibly playing each other in the Gator Bowl, and he was excited about Ohio State's big basketball win over Duke. And, he still really likes pumpkin pie.... he has not overdosed on it yet...Ted was planning on retiring from Morgan Stanley on December 31 and was planning on teaching full-time at Sinclair Community College. He was still taking Christine to Cincinnati for lessons with Joel Suggs on a regular basis and was still playing bridge weekly with John Meinking.
3. I am dealing with an environment beyond my comfort level. I have had to make life-changing decisions over the last 48 hours, which I never expected to have to make. I have willingly agreed with many recommendations from the medical staff. I have refused other recommendations from the medical staff, which have proved to be correct at this time. I am truly trying to listen to our One God as to what I should be doing. Your prayerful support that I continue to be tuned in to God when He is speaking to me would be much appreciated.
4. Thomas and Christine are very rattled about the "picture" of their father that they have seen. He is obviously hooked up to a lot of machinery. But, to be honest, he really looks good right now - much better than right before he was admitted. Thomas and Christine are having trouble dealing with all of this. Your kind emails would be helpful to them.
5. David is at Ohio State. His final exams begin on Monday. David and I decided that it was best for him to stay in Columbus, continue his duties at the Ohio State Swimming Invitational and to continue studying for his exams. He feels very isolated right now and in his words, he needs hugs.
7 . I have had very little sleep over the last couple of days. When I do get some sleep, it is usually interrupted by a call from the hospital. But, I am happy that almost all of those calls have been positive updates, for which I am extremely grateful. But, if I get testy with you, please write it off as Anne needs to get a nap.
5. David is at Ohio State. His final exams begin on Monday. David and I decided that it was best for him to stay in Columbus, continue his duties at the Ohio State Swimming Invitational and to continue studying for his exams. He feels very isolated right now and in his words, he needs hugs.
7 . I have had very little sleep over the last couple of days. When I do get some sleep, it is usually interrupted by a call from the hospital. But, I am happy that almost all of those calls have been positive updates, for which I am extremely grateful. But, if I get testy with you, please write it off as Anne needs to get a nap.
8. For those of you who are part of that American culture where you believe that you need to do something to help, PLEASE PLEASE DO NOT CALL. If you are impelled to do something, here are your options - you may choose any of them,,,, but please do not call ---- I am in overload.
(1) Your prayers in support of Ted, me, the children are much appreciated. When in doubt, say a prayer for any or all of us.
(2) If praying is not enough, please do not send flowers, your money can be used in any of the following ways:
Ted was getting ready to make a $500 gift to the Stivers Swim Team, which needs to raise money for its pool rental. That was a huge step for Ted. You know how he is with money! Any gift to the Stivers Swim Team would be appreciated. I have been raising funds for them for several months. Gifts should be made payable to the Stivers Athletic Dept. earmarked for swim team.
The Stivers Jazz Band still needs to complete their fundraising for their trip to the New York City Jazz Festival in March. Neither Ted nor I could make the parent meeting this week where the fundraising was discussed. Any gifts to the Seedling Foundation earmarked for the jazz band would be appreciated. Neither Ted nor I will be able to participate in any future fundraising this year.
The Miami Valley Golf Club Swim Team ( Makos) is a big part of our summer life and our extended family. The team is self - funded Ted has been in charge of getting sponsorships the last two years, and may not be able to do that this winter and spring for the upcoming summer season. Ted tooks this task over from Scott Rutherford, who had done it for at least three years. Any gifts to the Makos swim team to help with that issue can be made to
Miami Valley Makos Swim Team, care of Scott Rutherford, Code Credit Union, Dayton.
Our firm has a court runner, Anthony Derrick, who has been driving Ted around last week when Ted was unable to drive, and poor Anthony has had to listen to Ted pontificate on politics and the economy. Anthony is a single father with two young girls. Anthony has been looking for churches to sponsor a family for Christmas. He has been unsuccessful. He works only part-time for our firm, and has helped our family with doing odd jobs over the last couple of months. He would like to "give his girls a Christmas". If you are looking to get into the Christmas spirit by helping a family, send any donations to the Myers & Frayne Trust account. We will take it from there.
My faith in God and my increased understanding of His love for all of us has been my rock during the past couple of days and prior to that. Donations to my church, Second Church of Christ, Scientist, Dayton, Ohio or to The Mother Church in Boston, Massachusetts are always appreciated.
Having said all of the above, we appreciate your continuing friendship. We are not expecting anything from our friends or family except that you continue to be our friends and that you have a very merry Christmas. There may be no family Christmas card this year, or if there is one, Ted may be in a white turban. He would not be pleased!
THANK YOU from my heart for your being a part of our lives. But, please do not call and ask questions. Updates will be made to this blog.
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